PANDAS / PANS Journal

PANDAS / PANS JOURNAL is the first iOS app to allow parents to record symptoms and notes on a daily basis to diagnose and treat children with PANDAS / PANS.

What are PANDAS and PANS?

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) are characterized by a debilitating onset of intense anxiety and OCD in children.

In addition, children with PANDAS / PANS may experience tics and symptoms of depression, irritability, anxiety, and have difficulty with schoolwork. The cause of PANS is unknown in most cases but is thought to be triggered by infections, metabolic disturbances, and other inflammatory autoimmune reactions.

Why PANDAS / PANS Journal?

1. JOURNAL to record symptoms - For every child afflicted by this horrible condition, an entire family's life is turned upside down. Parents wake up every morning, wondering if it was all a dream, only to realize they are living the nightmare. PANDAS / PANS Journal is a place to record the daily behaviors, changes and medications of children with this condition to better-understand how to treat them.

2. COMMUNICATION tool between you and a doctor - We found that doctor's appointments can be overwhelming. It was a struggle to remember all that had happened since the last appointment and we didn't want to miss communicating any important details. PANDAS / PANS Journal provides an organized way to share data with the care providers of your choice.

3. GRAPHICAL ANALYSIS and rating scales - As you enter data our system will help you see the subtle interplay between symptoms and treatment of your child, empowering you with the insight of what is working and what is not.

4. CONTRIBUTION of data leading to medical breakthroughs - Researchers need data to make breakthroughs. You can choose to share your data to help with this process or keep it confidential.

Parents who have witnessed a child transform from happy and healthy to an inconsolable shell of their former self know the agony induced by this debilitating condition.

A child affected by PANDAS/PANS exhibits life-changing symptoms such as OCD, severe restrictive eating, oppositional defiance, anxiety, tics, personality changes, decline in math and handwriting abilities, sensory sensitivities, and the list goes on.

When PANDAS / PANS affected our lives person